Chronic
Fatigue Immune Deficiency Syndrome
/
Myalgic encephalomyelitis
Fibromyalgia
Multiple
Chemical Sensitivities & Environmental Illness
Toxic
Chemicals
Miscellaneous
Chronic Fatigue Immune Deficiency Syndrome (CFIDS) / Myalgic encephalomyelitis (ME) |
|
Action for CFIDS / M.E | Help to fight for the CFIDS / M.E. community! |
| The American Association for Chronic Fatigue Syndrome | Links, links and more links to: organizations, newsletters, databases, other pertinent pages and more! | |
| CDC CFS Home Page | Centers for Disease Control and Prevention finally addressing Chronic Fatigue with; CFS Defined | Support Groups | Facts About CFS | Studies | Publication Summaries | Treatments. | |
| Center for Complex Infectious Diseases | Specializing in the detection and characterization of viruses which have undergone a "stealth" adaptation to avoid elimination by the immune system. | |
|
Chronic Pain, Chronic Fatigue Syndrome, Fibromyalgia, and other Medical Resources | A creative looking page edited by Dragons & Lace which contains some very good information and news links. |
|
Chronic Fatigue Syndrome | Resources and links from universities to government. |
|
CFS / M.E. Information | Chronic Fatigue Syndrome / Myalgic encephalomyelitis |
| The CFIDS Association of America | The CFIDS Association of America is the nation's leading charitable organization dedicated to conquering chronic fatigue and immune dysfunction syndrome (CFIDS), also known as chronic fatigue syndrome (CFS), myalgic encephalomyelitis (M.E.) and many other names. | |
|
Chronic Fatigue Resources | Many good links. |
| Chronic Fatigue Unmasked | Sponsored by Healing Research Center, geared towards Dr. Gerald E. Poesnecker's book. Has some good info, links, ideas. | |
| Fibromyalgia and Chronic Fatigue Syndrome Page | Moira's Canberra, an Australian site. | |
| Health World | Traditional and supplemental medicine links for CFS support. | |
| Jackie's CFS Page | CFIDS sufferer offering many CFS links as well as some Fibromyalgia links. | |
| M.E.S.S. | M.E.S.S. is a volunteer organization dedicated to helping those who suffer from Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS). By keeping abreast of current medical research into ME/CFS, as well as the latest treatment strategies (both pharmaceutical and holistic), M.E.S.S. strives to foster understanding of this condition and the difficulties in living with it. | |
| The Mining Company | From search capabilities to chat/BBS links. | |
| Myalgic Encephalomyelitis | In depth issues and information on M.E. | |
|
New Age "Science" or Pseudoscience: | Maryann Sturgin's excellent book review, "New Age Science or Pseudoscience?" critiquing the Demitrack-Abbey set of essays on CFIDS. |
| Worldwide Electronic CFIDS/M.E. Action Network | Their mission is to act as an advocate on behalf of persons with CFIDS/M.E. |
Fibromyalgia (FM) |
| CSSA | Chronic Syndrome Support Association, Inc. - This newsletter is written *by* both traditional and alternative health-care professionals and people (and/or SOs) who suffer from Chronic Fatigue Syndrome, Fibromyalgia Syndrome, Gulf War Syndrome, Multiple Chemical Sensitivities Syndrome and Myofascial Pain Syndrome. They are always on the look-out for new information, articles, stories or other material to include in the newsletter. See web site for submission details. | |
| Colorado Health Net | This center points to information on fibromyalgia programs and issues. The center also contains new information on chronic fatigue syndrome. | |
| Disability Benefits | A good article on the Social Security Administration disability benefits process. Joshua W. Potter is an attorney. | |
| Fibromyalgia and Chronic Myofascial Pain Syndrome Worksheet | Kirk Gatzka has created an excellent Fibromyalgia and Chronic Myofascial Pain Syndrome Worksheet which you may copy and use for your own personal use only. | |
| Fibromyalgia Resources | Links to a variety of FM links and information. | |
| Fibromyalgia Syndrome | A decent source of information, just realize that there is a constant reminder to buy various publications.... | |
|
Joy's World | She promotes a positive attitude and humor in dealing with FMS. The purpose of this site is to bring information to FMS people. |
| ME & FM Manual | The purpose of this Web site is to show the content of the M.E. & FM Manual Newsletter. The Manual contains information on both M.E. and FM including 55 symptoms, 48 Drugs, 49 therapies, 47 disability benefits, 67 Books, 68 other organizations and societies. | |
| Moira's Canberra Fibromyalgia and Chronic Fatigue Syndrome Page | A very good FMS/CFS information site. Designed particularly for Australian PWF and PWCFS's. | |
| Zoe's Page
|
Welcome to Zoe's world of Fibromyalgia (FMS)! She offers some interesting links for FMS/MPS. |
Multiple Chemical Sensitivities(MCS) / Environmental Illness(EI) |
| Colorado Health Net | Multiple Chemical Sensitivities Center | |
| Environmental Health Center -Dallas | WEB Bulletin board, newsgroup-type of listings | |
|
Mothers & Others | Caring for the earth is as much our personal and community responsibility as caring for our children. Mothers & Others, a national nonprofit education organization, works to promote consumer choices which are safe and ecologically sustainable for current and future generations. They publish the monthly Green Guide. |
|
Resources for the Chemically Sensitive or Environmentally Ill | A resource index provided by Lassen Technologies that ranges from doctors to carpets. |
|
St John's University Archives of | Ability to search the archives of MCS-IMMUNE-NEURO MCS/Chemical Injury Support. |
| Toxicology and Environmental Health Information Program | Supports interactive retrieval services in toxicology and environmental health, as well as in other health-related areas. | |
| University of Washington's Department of Environmental Health Library | The online EH Library Current Contents Bulletin includes new EH Library acquisitions, online information, general environmental health news, grant information, and news items that review Web sites USENET and email groups, and more. |
Miscellaneous |
| The Cold Body Page | Interesting page showing relationship of low body temp with various illnesses and problems. | |
|
DISINISSUES | A new list designed to exchange of information and advice about the
process of applying for, appealing, and renewing
disability insurance from private long-term
disability insurors and the U.S. Social Security Administration. If you wish
to subscribe to DISINISSUES, send a message to: [email protected]
That says: subscribe DISINISSUES firstname lastname The list is particularly targeted toward patients suffering from CFIDS/M.E. (chronic fatigue and immune dysfunction syndrome, or Myalgic Encephalomyelitis, or chronic fatigue syndrome),Fibromyalgia, Multiple Chemical Sensitivities, Gulf War Syndrome, Post-Polio Syndrome, Multiple Sclerosis, Lupus, and other similar diseases. |
|
Immune-related Resources | Links from allergies to toxicology. |
| Mary Schweitzer's Home Page | Here is your chance to respond to: "The Actively Sick," an editorial printed in The Wall Street Journal 26 August 1997, p. A16 | |
| NIEHS is for basic research on environment-related diseases | ||
|
OneEarth | A browseable public service directory recognizing progressive organizations and companies working to improve our culture and environment through their resources and actions. |
|
PROMED | A central goal of ProMED is to establish a direct partnership among
scientists concerned with emerging infectious diseases
in all parts of the world; building the appropriate networks to encourage
communicating and sharing information is a key objective. Reporting of incidents
or outbreaks, infectious disease problems of emerging interest, and discussions
on how to improve surveillance and response capabilities (including needs
at the local level) are especially encouraged.ProMED's e-mail list, ProMED-mail,
invites and welcomes the participation of all interested colleagues, and
also students and others who are not health professionals. All that is needed
is a strong interest in emerging diseases of humans, animals or plants. To
subscribe to the ProMED-mail electronic conference (which is moderated),
send e-mail to: [email protected] Leave the Subject line blank (or put anything you like there), and write subscribe promed in the text space. |
| Sapient Health Network | An interactive health information service developed for people with chronic and serious illnesses. | |
| SSI | Summary is provided by the Federal Register for changes being proposed in Social Security regulations to clarify how administrative law judges and the Appeals Council are to evaluate medical evidence. | |
| Sydney CFS Conference 2/98 | Information pertaining to the CFS conference as well as links to: research, scientific journals, pharmaceutical, CFS sites and societies. | |
| Worldwide Healthcare Forums | Worldwide Healthcare Forums was created to facilitate global interaction among healthcare professionals on specific topics. We encourage discussion of cases, research developments, information technology, economic issues, and political issues relevant to the Healthcare industry. |
Toxic Chemicals |
|
Agency for Toxic Substances and Disease Registry | The mission is to prevent exposure and adverse human health effects and diminished quality of life associated with exposure to hazardous substances from waste sites, unplanned releases, and other sources of pollution present in the environment. |
|
Environmental Technical Information Project | Waste Not Table of Contents focusing on incinerators, dioxinm etc. |
|
The Extension Toxicology Network | Objective, science-based information about pesticides - written for the non-expert. |
|
Flashpoint Online! | Interior of Alaska investigative News Journal by Charles Rollins Jr. Has some good toxic info links; water, dumping, etc. A special highlight is the The Six mile contamination site is located 6 miles south of Fairbanks Alaska, on the Richardson Highway. Local victims are asking for the support of potential tourists in order to persuade their officials for support. Check it out! |
|
Hazardous Substances & Public Health | A quarterly newsletter published by the Agency for Toxic Substances and Disease Registry (ATSDR). |
|
Hazard Substances Review | The last issue listed here was in 1995, but it has a quiz, a carcinogen list and an extensive list of links to related sites. |
|
Our Toxic Times | Not an online publication, but such a quality one
I highly recomend it. It 's in-depth information
of chemicals is detailed , but comprehendable to the MCS person
or other lay person. Send for a sample copy and see for
yourself. Chemical Injury Information Network PO Box 301 White Sulfur Springs, MT 59645 The paper runs on donations. |
|
Rachel's Environment & Health Weekly | Extensive index and search capability of this e-news source. Heavy emphasis on toxic issues. |
|
The Right To Know Network | Today, RTK NET offers access to more than thirteen different health and environmental databases. The Census is also available, with direct links to several environmental databases. |
To: Index
Page 
To:Cool Stuff
Page
